Oxygen Dependent but Taking It Off Every Now in Again
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Has whatever i been told that likewise much oxygen can exist harmful? When I am sitting I don't demand oxygen merely when I kickoff moving around my level drops below ninety% in a short time then I bought a domicile unit of measurement thinking I could just use it all the time and avoid the need to wire myself up, every bit I call it, when I start doing something. I was told that too much oxygen could be harmful to you lot. At present I don't know if I should use oxygen all the fourth dimension. Ken
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I am the same as you. Sitting my O2 is mid to high 90s. With activity it drops to 86-90. This has not inverse in a year. I use O2 at night with CPAP. This by Tuesday had an semi-annaul CT scan and breathing exam. Animate was v percent better. CT scan was the same. Thus, not much change in 14 months. I but use O2 when I commencement breathing hard with activity. I do not apply oxygen when sitting. I think the reasoning is that if you breathe on your own your are strengthing your lungs. With oxygen your lungs practice non take to work as hard. I hope this helps.
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Hi Cooper,
Thanks for getting in affect and sharing your experience with us! Was it the oxygen levels betwixt 86-xc that qualified you for night oxygen? I think the standard process (if there is i with this disease…) is that nether 89% qualifies patients for oxygen, which is why I am hoping Ken can get a script for oxygen use to ensure it is used safely.
I recall you're right nearly the importance of making our lungs work harder when not using oxygen, which is of course of import for maintaining strength. I likewise heard too much oxygen can effect the oxygen exchange, and cause a build up of C02 which of form is dangerous. I'm going to look more into it, but I call back being cautioned nearly using just oxygen as prescribed…
Talk to you soon and I promise yous're doing well!
Charlene.
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Hi Ken,
Although I found information technology hard to believe at starting time, yes, I have heard that there are issues that arise with too much oxygen, like to having as well piddling. Information technology has something to do with the oxygen exchange, and having besides much 02 can crusade the carbon dioxide levels in your blood to become off residue which can exist toxic of course if there is too much. I don't understand the full mechanics of it, but definitely have heard that too much oxygen can be problematic. I probably wouldn't use your habitation automobile all the time, especially if your levels are 98+% as y'all don't want to have too much. Was your doctor non willing to prescribe yous oxygen? He/she should have been, especially if your numbers drop beneath 90%.
Permit us know what yous decide, and glad you're monitoring your levels closely to check when y'all might demand the oxygen vs. when you may not. Take intendance, and I'd definitely recommend speaking to your medico about this as you should be able to get a prescription for 02 if your numbers are nether 90%, I believe it is <89 that you qualify.
Talk before long,
Charlene. -
My doctor at UAB Birmingham told me that too much o2 is non a problem. In my example I can maintain depression 90'southward without o2 (sitting) just my pulse rate is elevated. When I use o2 my pulse drops to the depression 90'due south. Your body but takes in the o2 that it needs so the excess is but breathed back out. Stressing to obtain o2 too is asking for the onset of pulmonary hypertension and other organ deterioration.
My want to not use it was but an ego thing. If you wait to feel discomfort to use it, so damage is existence done to your system.
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Hi Charles,
Thank you so much for sharing this – always interested in hearing if pulmonologists/specialists say well-nigh oxygen use. I completely agree with you nigh the importance of not being chronically nether-oxygenated, or struggling also much as this can cause an onset of other issues, like PAH as you say. Nevertheless, I certainly thought that too much oxygen can cause an issue with carbon dioxide build upwards, but maybe this is merely if your saturations are normal and someone is using oxygen? It does make sense that if your sats are low and so too much oxygen isn't an upshot, as it would bring them back upwardly to normal ranges. Not sure, but e'er curious to hear input from others and so I appreciate your sharing. I know UAB is a great centre!
Take intendance,
Charlene.
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Hi I just wanted to tell y'all that yes I have heard my husband'southward doctor say that too much oxygen is not good either, merely they seem to be talking more almost a person with pulmonary fibrosis would not need to take an oxygen level over 98 . Another thing I would similar to notation to people with this was my hubby'southward principal physician keep asking him to go get his eyes checked which he wouldn't do so finally I fabricated an date to go my ain eyes checked and his also . We constitute out he had advanced glaucoma due to not using oxygen earlier in his fibrosis like he was supposed to. He went for four years never using information technology he would just let his self run out of jiff and so collapse in his chair. Later talking to the eye doctor he said your your optic nerve has its own blood supply and it needs a lot of blood in by him doing that he was depriving the optic nerve of blood. Now I'grand just maxim what he told united states and now my husband has to put eyedrops in his eyes every mean solar day or y'all'll get blind that's what fabricated him start using his oxygen all the fourth dimension the fright of blindness
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How-do-you-do Janet,
Thanks so much for sharing, this topic seems to be of interest to many people and the "jury" (ie. doctors) seem to be a chip inconsistent in their answers. I suspect the problem with too much/excess oxygen is when our saturations are higher and supplemental oxygen would make them 98-100+. This makes sense that it is when it could become an consequence with gas substitution, and building up too much C02. So much to learn!
Actually interesting to hear well-nigh your husband'southward heart exam, although so sorry it revealed a glaucoma. I had no idea this could be a problem due to nether-oxygen use, and distressing to hear yous both had to learn this. I am glad he now uses his oxygen though and that the center drops will hopefully prevent whatever farther deterioration. Wishing you both nothing merely the best and cheers once again for sharing.
Charlene.
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At that place is a lot of confusion on this topic. One can read details elsewhere on the Net, only the short reply is this: Too much supplemental oxygen can be hazardous for a patient with COPD. Many people read or hear this and recollect that it applies to all lung disease, nevertheless it does not. There is no trouble of "backlog" oxygen for IPF patients. Problems of gas exchange and CO2 buildup tin can occur in COPD patients but not in IPF patients. Someone with IPF does not demand to be concerned with getting likewise much oxygen.
Before you had IPF, your body worked to keep O2 saturation at 95-100%. At present that yous take IPF, use your supplemental O2 to endeavor to maintain that level. Don't worry most your O2 saturation getting too high — in fact, in this example there isn't such a thing as "besides loftier". 100% is the maximum and information technology is quite acceptable for a salubrious person or an IPF patient to have 100% saturation although 95% is mostly sufficient.
Too low O2 saturation is a trouble: It not just makes you feel bad, it damages your torso. When the O2 saturation gets likewise low then there is not enough oxygen to meet the needs of the cells and over time this volition crusade organ impairment.
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Hullo Richard,
Thank you so much for joining u.s. and contributing to this post. I had no thought nigh the information you shared, so it was really helpful to learn the difference between the affect of excessive oxygen on COPD and IPF patients. I must accept been hearing about how besides much oxygen tin cause gas substitution problems for patients with COPD, and assuming information technology was for all lung diseases. Your caption does make a lot of sense! And yes, I completely agree nearly the 02 being too depression and risk of jail cell and organ damage. This is so of import for everyone to note – that oxygen impecuniousness causes damage beyond only feeling unwell.
Thanks again for writing!
Charlene. -
Sorry about the higher up. I copied from a notepad and pasted into the 'visual " tab in the Reply field. Here goes over again:
My husband has recently started O2 therapy and was not given clear directions or perhaps he has forgotten.
When I had recent occasion to submit an application for Ofev medication aid, I noticed in the physicians summary that information technology seemed to propose he would only need it when ambulatory. Nonetheless, he has been using it the in the opposite way- while sitting for long periods in front of the TV- merely non using it when he's out of the business firm or for hither & there inside (which incidentally he was able to do for the almost part as long every bit he wasn't carrying things or otherwise exerting himself.) I suspect that his lungs are used to getting enriched air at rest and so upon getting up, one would wait him to take difficulty animate hands without the extra O2 concentration. (I think the problem is that he is embarrassed well-nigh wearing the oxygen and thinks somehow he can make up for information technology or "shop information technology" when in actuality he is increasing his demand for it.So based on my ascertainment that he is less able to walk to the bathroom or to the other side of the house with out getting out of breath, I must conclude that it is Non helpful for him to utilise oxygen when his lungs are doing fine; in other words, he is using too much and creating a dependency where there was none before. He comes from a family that has about the least common sense almost sickness and virtually maintaining a salubrious lifestyle that I could have always imagined. He volition not listen to me and his PT will non start until September so I doubtable I will need to reach out to the practice. He mentioned something about the nurse who gave him the walk examination saying he "needed to be on O2" is this the person I should attempt to arrive contact with to counsel us?
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Hi Carolyn,
Thanks and then much for writing almost this topic – information technology is tough one because fifty-fifty when our doctors prescribe the use of 02 a certain manner, our bodies feel the need for it differently. I call back being prescribed a certain LPM (litres per infinitesimal) awhile doing physical activity and that was okay for awhile but and then it wasn't enough and so I turned it upwards a picayune higher and had to expect until my next appointment to inquire if the amount I was using was okay. Is there an opportunity coming up (ie. a doctor'southward date) where you lot could enquire for clarity on his 02 use?
I mentioned this in a higher place also merely I'd heard somewhere that you can't have likewise much oxygen for IPF patients due to the low 02 in the claret when our lungs aren't pumping enough (whereas, you can have besides much o2 with COPD and cause problems), but I can't be sure this is true. I retrieve your theory sounds correct, and it does make sense to me but certainly worth connecting with your physician about or even the 02 provider. The concluding thing I'grand sure both of yous want is to create an increased demand for oxygen instead of keeping his lungs strong and working difficult. That said, you also want to ensure his other organs are adequately oxygenated, it is such a fine balance! I'd try to get in affect straight with the pulmonolgist who ordered the oxygen, just then he can review the reports and tests suggesting your husband'south need for oxygen. I know doctors are often difficult to get ahold of – does he have a nurse working with him (NP) or a physicians assistant? Worth an ask to them if the doc is hard to track down.
Thank you for writing!
Charlene.
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Give thanks yous, Charlene. That is helpful.
He has an appointment on September 12th that I am going to, but I think I will try to get him to briefing the nurse with us on the telephone this calendar week. We'll work our way up to the medico if necessary, merely it seems simple plenty.
Take intendance,
Carolyn
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A petty off topic, but the nurse coordinator/practitioner in your pulmonologist's function will go your all-time friend. Mine is very accessible and knowledgeable. She is almost always able to answer my questions, and she'south the one who oversees my oxygen needs.
- This answer was modified 2 years, seven months ago by
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So glad to hear this Cynthia, cheers for sharing! Definitely a great resource for folks to know near and glad to hear the NP is helpful and accessible for your questions 🙂
Regards,
Charlene.
- This answer was modified 2 years, seven months ago by
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How-do-you-do @carolyn,
No problem, I hope yous have success connecting with your doc directly alee of the appointment on September 12th. I know for me, sometimes waiting fifty-fifty a month feels so daunting when I am drastic for answers. If he will always exist eligible for transplant, the pre-transplant coordinator at your infirmary should exist able to help equally well, I truly don't know what I'd practise without mine! She is wonderful. Otherwise, I hope consulting with the nurse can get some answers for you. Keep us posted and feel free to write any time, nosotros're here for you lot!
Charlene. -
What a corking topic. I have been on oxygen for near twelvemonth have had IPF for nigh 4 years. I use oxygen when I am agile but when I am resting I do not use information technology all the time but when I feel a need for or get panicky which happens. I will use it to bring my lungs back to the 90s. I do think its important to try an strengthen the lungs as much equally I can. Thank you all for this helpful information. Sam
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Y'all tin can absolutely accept as well much oxygen. Google Oxygen Toxicity. Very dangerous. I accept been suffering from it and it inhibits my ability to take oxygen. Then oxygen burns and causes pneumonitis lowering saturation levels further. Once you are stricken the only cure is to sit down still and minimize your oxygen usage. Plain a disaster. I am on month 2 very deadening healing. Probably caused more by loftier flow oxygen and exertion or exercise. Take merely that which is necessary to stay above 90 or 85 at the lowest. Nearly doctors don't know this. Mine say "I don't practice oxygen!?" And dole it to the nurse. who knows fiddling. Please exist conscientious with over employ of oxygen. For what it's worth. six twelvemonth PF Vet. Nevertheless live past studying the medical websites.
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Thanks for sharing this Ben!
This is something I need to work on understanding improve (from a md), considering I remember oxygen toxicity or the potential for it is dissimilar for each respiratory affliction. For example, I know the air trapping is different in COPD vs. IPF on a physiological level simply I don't quite understand all of it. I'll have to do some enquiry, simply so pitiful to hear you had this experience and that the healing is very slow. I hope you lot keep to amend, and cheers for sharing this experience with the states all.
Char. -
I'm nonetheless dislocated well-nigh besides much O2. I have been moved to seven since I collapse when I walk over a infinitesimal. Even the seven doesn't. My pulmonologist has been taken to the hospital and I dont see my new md (a 2d opinion doctore new practice) for a couple of months. Anyway, I think 7 is too much for sitting since a three keeps me at 91/92 and a v keeps me at 93/94 — vii keeps me at 99.
Any suggestions???
anne
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Hullo Anne, I would speak to your physician and relay him this information. Information technology's possible he could rewrite your script. He would have to perform several tests, one being the six minute walk test. No one on this forum could to tell you to adjust your liters per infinitesimal. Hopefully your doctor will be able to provide you the answers you demand. Happy new year Anne, Mark
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Information technology is standard to take three different oxygen levels – one for resting, one for exertion and one for slumber. 7 is loftier catamenia and should only exist used for the exertion as you say. Used all the time it will probably irritate your lungs as it did mine. The 3 sounds about right for rest and maybe fifty-fifty ii for sleep. This pause in high menstruation should keep you out of trouble until you meet your new physician. A bubbler on your stationary concentrator helps with the burn down. I love the Millenium.
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